- Insights on the differences between represented and underrepresents populations on their barriers to care
- Challenges and nuances of rare disease patients’ journey to receive a diagnosis
- Mental health and well-being: the emotional toll rare diseases take on patients and caregivers
- Exploring overall experiences individuals have had within the healthcare system: strengths and areas for improvement
Harsha K. Rajasimha, MS, Ph.D, Founder and Executive Chairman, Indo US Organization for Rare Diseases