WORKSHOP: Building patient trust to overcome recruitment barriers when existing treatments exist

  • Concept: This interactive workshop focuses on how sponsors, CROs, and site teams can build and sustain patient trust to overcome recruitment barriers in trials where existing treatment options are available. Through practical examples and facilitated group discussion, participants will explore how to work with patient advocacy networks, design lower-burden enrollment procedures, and communicate trial value in clear, patient-friendly language that addresses common concerns.
  • Takeaway: Attendees will leave with a practical set of trust-building tactics and patient-centered messaging principles they can use to improve enrollment rates and shorten recruitment timelines when “standard of care” alternatives compete with trial participation.

WORKSHOP: Expanding patient recruitment and retention efforts in clinical rare disease clinical trials

  • Concept: This interactive workshop focuses on how to broaden the recruitment funnel and sustain participation in rare disease trials by solving operational access challenges and building infrastructure that can be reused across studies. Through facilitated table discussions and peer sharing, participants will compare models for improving patient accessibility, to reach more eligible patients and keep them engaged through study completion.
  • Takeaway: Attendees will leave with a practical blueprint for expanding reach—combining access solutions, repeatable recruitment processes, and partnership pathways—to improve both enrollment and retention in rare disease clinical trials.

Panel Discussion: Selecting and managing vendors for rare disease trials

  • Creating vendor selection criteria and processes
  • Establishing shared goals and KPIs to foster trust and alignment
  • Managing expectations on timelines, budgets and deliverables
  • Evaluating vendor capability in finding and supporting rare disease patients
  • Monitoring vendor performance, governance and communication plans