PRIZE DRAW

Visit our exhibitors’ booths throughout the day and collect stamps in order to enter our Prize Draw and be in for a chance of winning Apple devices or Amazon giftcards. The Prize Draw will take place in the Exhibition Hall. Make sure you don’t miss out!

Strategies for success when every patient counts: enhancing retention and protocol compliance in ultra-rare and genetic disorders

  • In rare populations, every patient carries significant weight, making retention more critical than in most other therapeutic areas.
  • Because patient numbers are extremely limited, attrition cannot be absorbed—losing even a single participant can jeopardize the entire study.
  • Rare disease trials often focus heavily on recruitment, but retention is equally essential and frequently overlooked.
  • Collaboration with the Community is key
  • Case studies