Archives: Speakers

Few people with a cause walk the talk as boldly and graciously as Christine Von Raesfeld, Lived Experience Expert/Citizen Scientist. Christine is a pillar of patient advocacy and allyship in the rare and chronic disease community. Through the lens of her own journey in healthcare, she has become a champion for patient voices, diversity and inclusion in clinical research, and equitable patient-sponsor partnerships.**

A sought-after speaker, Christine brings firsthand expertise to discussions on clinical trials, data rights, and digital health. She serves as an e-patient scholar with Stanford MedicineX and a Committee Member with the Partnership for Quality Measures (CMS), among other roles. Christine advises initiatives like Stanford’s “Humanwide” Precision Medicine Program, the NIH All of Us Research Program, and the NIH HEAL Initiative. She co-authored the patient-led AI Rights Initiative with The Light Collective, focusing on ethical data use and personalized medicine.

Christine recently published a research paper analyzing her own complex medical journey[43dcd9a7-70db-4a1f-b0ae-981daa162054](https://journal.researchtothepeople.org/christine?citationMarker=43dcd9a7-70db-4a1f-b0ae-981daa162054 “1”), highlighting the value of patient-partnered genomics in understanding rare and chronic conditions. She has additional works on patient engagement and healthcare innovation forthcoming.

Recognized for her contributions, she has been named one of Silicon Valley Business Journal’s Top 100 Women of Influence, a Silicon Valley Community Hero, a member of the 2021 HIMSS Future50, and one of Medika Life’s 50 most influential voices in healthcare.

After more than 25 years in the biopharmaceutical industry – I have now joined Denali as the Vice President, Clinical Manufacturing. I’m looking forward to helping Denali deliver the clinical pipeline to patients waiting for treatments.

•Proven skill in leadership and the ability to overcome/solve any problems
•Outstanding written and oral communication skills
•Confident in making independent decisions
•Personable and persuasive in communicating creatively with a variety of people from culturally diverse backgrounds and economic levels
•Experienced in applying GMP in both a lean and batch manufacturing environment
•More than 7 years experience in supervising, training, and teaching subordinate personnel
•Very well organized and able to motivate others
•Proficient in the use of computer software such as Microsoft Office, including extensive statistical analysis using Excel and Kadd add-in; experienced at creating surveys using online websites such as survey monkey, questionpro, etc.
•Clearable to Secret level of Security Clearance